Neonatal Hemochromatosis

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Neonatal Hemochromatosis

Post  kirsty on Thu Jul 10, 2008 12:58 am

Hi this is what my son passed from its very rare and fatal condition.......

Neonatal Hemochromatosis (NH) is a rare condition which occurs while the baby is developing in the mother's womb. Toxic levels of iron accumulate in the liver as well as other places in the unborn baby's body. NH looks very much like another condition known as "Hereditary Hemochromatosis" (HH) also known as iron overload disease which is genetic (see www.americanhs.org for more information on Hereditary Hemochromatosis) NH is not considered to be "genetic".
Unfortunately, Neonatal Hemochromatosis is usually deadly to the fetus (unborn baby) or if born alive, kills the baby in the first weeks or months of the baby's life due to complications of the toxic amounts of iron in the baby's body. A liver transplant can, in some cases, save the baby's life and/or a combination of special drugs. Occasionally, a baby will "overcome" the effects of NH and survive without a liver transplant. It is imperative that the baby is treated by physicians familiar with the disease or physicians willing to consult with experts familiar with this disease. A woman may have one or more healthy children in her life before having an NH baby. A woman can have a healthy child after an NH baby, however, the risk of a woman having another NH baby after having her first NH baby is greater than 80%.

sorry its so long i hope u can all understand it xxxxx
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kirsty

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Re: Neonatal Hemochromatosis

Post  Elliesmummy on Thu Jul 10, 2008 1:09 am

Thank you for sharing hunni id never ever heard of this before
xxxxxxxxxxxxxxxxx

awww
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Re: Neonatal Hemochromatosis

Post  kirsty on Thu Jul 10, 2008 1:13 am

your so welcome hunni its so rare im only the 10 person in britain to have had it xxxxxxxxxx
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